Meet Maddie! Madison was born via C-section and quickly rushed to the NICU due to breathing difficulties. An MRI led to a Neuronal Migration Disorder diagnosis caused by the abnormal migration of neurons in the developing brain and nervous system. She spent 32 days in the NICU, and was readmitted due to high CO2 levels. Doctors performed a tracheotomy and discovered she also had Bronchial Tracheal Malacia. She was also diagnosed with Ehlers Danlos Syndrome, affecting her skin, joints, and blood vessels at age 2.

 

Madison loves: her St. John’s team and the hokey pokey